We aim to give patients a voice in our research and engagement activities that is valued and utilised.
Highlights
Projects include A Pattern for Progress and What a Nerve!
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Parkinson's UK Branch Meeting update, 2020 In collaboration with PUK West Herts Branch |
Unknown Unknowns, 2020 In collaboration with Blood Cancer UK and Kettle's Yard |
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MS Society Stem Cell Research News, 2020 In collaboration with MS Society Cambridge and District branch |
A Pattern for Progress, 2019 In collaboration with the MS Society and Kettle's Yard |
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Laboratory tour, 2019 In collaboration with CRUK |
What a Nerve!, 2019 Featuring Rebuilding Connections, as part of Cambridge Science Festival |
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RareFest, 2018 |
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Why?
- 60% of our research groups are investigating stem cell behaviour in a disease scenario, yet the majority of our researchers have never met a patient suffering from the condition they study.
- Valuing a patient or carer’s lived experience, and using these insights in our research will ensure our key scientific goals are people-centred and responsive to the society they seek to serve while also helping us maximise our impact.
How?
- We will build relationships with both local and national patient organisations and charities and explore new ways to collaborate.
- We will develop and market targeted campaigns to engage patients and carers resident to the Cambridge Biomedical Campus to visit our bespoke public space and café.
- We will introduce a patient governance framework including specialised patient representation to review our science and engagement strategies.
- We will pilot a co-developed research programme between a patient group and one of our clinically focussed research teams.
Outcomes
- Relationships between patients and researchers are sustained and deepened.
- Mutual respect leads to a change in established hierarchies.
- Patients lived experience is valued and utilised by researchers.
- Design and delivery of stem cell research is more people-centred.