We aim to give patients a voice in our research and engagement activities that is valued and utilised.
Why?
- 60% of our research groups are investigating stem cell behaviour in a disease scenario, yet the majority of our researchers have never met a patient suffering from the condition they study.
- Valuing a patient or carer’s lived experience, and using these insights in our research will ensure our key scientific goals are people-centred and responsive to the society they seek to serve while also helping us maximise our impact.
How?
- By building relationships with both local and national patient organisations and charities and explore new ways to collaborate.
- By developing and marketing targeted campaigns to engage patients and carers resident to the Cambridge Biomedical Campus to visit our bespoke public space and café.
- By introducing a patient governance framework including specialised patient representation to review our science and engagement strategies.
- By piloting a co-developed research programme between a patient group and one of our clinically focused research teams.
Outcomes
- Deepen and sustain relationships between patients and researchers
- Increased mutual respect, leading to a change in established hierarchies
- Valuing and utilising patients' lived experience
- Design and deliver stem cell research in a more people-centred way
Highlights
Projects include A Pattern for Progress and What a Nerve!
 |
|
|
Parkinson's UK Branch Meeting update, 2020 In collaboration with PUK West Herts Branch |
Unknown Unknowns, 2020 In collaboration with Blood Cancer UK and Kettle's Yard |
 |
 |
|
MS Society Stem Cell Research News, 2020 In collaboration with MS Society Cambridge and District branch |
A Pattern for Progress, 2019 In collaboration with the MS Society and Kettle's Yard |
 |
 |
|
Laboratory tour, 2019 In collaboration with CRUK |
What a Nerve!, 2019 Featuring Rebuilding Connections, as part of Cambridge Science Festival |
 |
|
|
RareFest, 2018 |
|