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Giving patients a voice

We aim to give patients a voice in our research and engagement activities that is valued and utilised.

Recent highlights

Projects include A Pattern for Progress and What a Nerve!

Why?

  • 60% of our research groups are investigating stem cell behaviour in a disease scenario, yet the majority of our researchers have never met a patient suffering from the condition they study.
  • Valuing a patient or carer’s lived experience, and using these insights in our research will ensure our key scientific goals are people-centred and responsive to the society they seek to serve while also helping us maximise our impact.

How?

  • We will build relationships with both local and national patient organisations and charities and explore new ways to collaborate.
  • We will develop and market targeted campaigns to engage patients and carers resident to the Cambridge Biomedical Campus to visit our bespoke public space and café.
  • We will introduce a patient governance framework including specialised patient representation to review our science and engagement strategies.
  • We will pilot a co-developed research programme between a patient group and one of our clinically focussed research teams.

Outcomes

  • Relationships between patients and researchers are sustained and deepened.
  • Mutual respect leads to a change in established hierarchies.
  • Patients lived experience is valued and utilised by researchers.
  • Design and delivery of stem cell research is more people-centred.