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Cambridge Stem Cell Institute

 
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We aim to give patients a voice in our research and engagement activities that is valued and utilised.

Why?

  • 60% of our research groups are investigating stem cell behaviour in a disease scenario, yet the majority of our researchers have never met a patient suffering from the condition they study.
  • Valuing a patient or carer’s lived experience, and using these insights in our research will ensure our key scientific goals are people-centred and responsive to the society they seek to serve while also helping us maximise our impact.

How?

  • By building relationships with both local and national patient organisations and charities and explore new ways to collaborate.
  • By developing and marketing targeted campaigns to engage patients and carers resident to the Cambridge Biomedical Campus to visit our bespoke public space and café.
  • By introducing a patient governance framework including specialised patient representation to review our science and engagement strategies.
  • By piloting a co-developed research programme between a patient group and one of our clinically focused research teams.

Outcomes

  • Deepen and sustain relationships between patients and researchers.
  • Increased mutual respect, leading to a change in established hierarchies.
  • Valuing and utilising patients' lived experience.
  • Design and deliver stem cell research in a more people-centred way.